water fun at Auntie Suzy's house

at the beach with cousin Andrea

Carly's dance recital

beach day

Friday, August 13, 2010

Radiation Ends - School Begins!

Well, it was the day we have all been waiting for - Abby had her last day of radiation and has completed all of her treatments!!!! We are all so excited for her resume her normal life and get back to being a kid. Abby went back to school yesterday and all of her friends were so excited to see her. It was a great day.

So, where does she go from here? Abby is not technically in remission yet. She will have another MRI and lumbar puncture in 8 weeks. If all is clear and normal, she will be considered to be in remission. She will continue to have MRI's and lumbar punctures every 3 months for the first year post treatment and then every 4-6 months for four years after that. A patient is considered cured after 5 years post treatment with all tests and labs being normal and no relapses. She will always be considered a "cancer survivor" and followed by doctors throughout her life. Along with that, she will always be on hormone replacement medications for the hormones her pituitary gland and thyroid gland no longer produce. These are not an affect of chemo or radiation. It was the lack of these hormones that brought our attention to her diabetes insipidus and then the brain tumor. She will most likely require growth hormone injections to help her through puberty. It is unclear and unknown what this will mean in her adult life and her ability to conceive children. Lastly, she will have another neuro psych test in 18-24 months of completing radiation to see if radiation has effected her cognitive development.

Her journey is not over, but for now we are so grateful and overjoyed that she is doing well and her progress is going in the right direction. Abby has shown a tremendous amount of strength and courage throughout this process. She is truly amazing and we are so proud of her!

1 comment:

  1. It has been awesome having Abby back at school. Everyone missed her so much and she seems really happy to be back too! She walks around with such confidence and self esteem. We should all feel that great about how we look!

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