I have not written a blog update in awhile. Things have been going well for Abby. She is back in school, she was feeling well, her hair is growing back and generally happy. Soon after school began, Abby had been complaining of headaches. She went home from school early a few days. It was thought that she was having headaches from adjusting to her new glasses. Within, the last week and a half Abby has been extremely tired. She has come home from school early and missed a few days of school to come home and sleep. She has taken 2-3 hour naps sometimes 2 times a day. She went to see her Pediatrician yesterday. Labs showed that she is not anemic and felt that she must be fighting a virus. Well, parental instincts felt like it could be something else. Cori and Craig were feeling anxious and worried, so Cori emailed the Neuro Oncologist today and he got back to her right away. He thought it may be a delayed response (reaction) to radiation. It is common to have these side effects months after treatment is over.
Abby is being admitted to Children's Hospital in the morning for approx. 2 nights to run multiple tests. She will have an MRI and lumbar puncture to make sure the tumor is not present. Other tests to rule out endocrine problems (hormones) and rule out hydrocephalus. Primarily they will be looking into "Radiation Somnolence Syndrome" which is a side effect from radiation.
I will post more as we get results from tests.
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